Thursday, September 29, 2005


 

Maggie's status as of 9/29

Maggie had one of the worst nights with seizures that I can remember. The ramifications of cancer are far reaching. After her seizures passed last night, Maggie and I sang hymns together until she finally dropped off to sleep at 11:30pm. Her favorites: Amazing Grace, It is well with my soul, This is my Father’s World, and  A Mighty Fortress is Our God. Maggie has a lot of the words memorized from choir camp last year, and it is indeed such sweet music to listen to her sing.

 

They are moving her to Pediatrics ICU and will start a vercet (sp?) drip and treat her with general anesthesia should the vercet drip not work. She is still on a feeding bag, unable to eat much at all. She has several hours of really good moments and then they start back again.

 

At this point, it would not surprise me if Maggie stays in the hospital until we leave for St. Louis on 10/8. If that is case, Maggie will have spent about a solid month in the hospital.

 

Kathi and I are beyond exhausted. I can’t really describe how tired we feel and we have 3 more weeks to go with 2 more weeks of hospital.

 

At times, it feels like God is giving us much more than we can handle, but I know His Word says otherwise and its’ that that I need to trust.


Comments:
Rob, as I just tucked my two little girls into bed I cannot imagine wathcing them go through what you're watching Maggie go through. I hurt for you and Kathi and wish there something to do to help.

Thanks for being honest when what God says and what we experience don't seem to match up. It is there, in that disconnect, that raw, wounded, bloody trust must suffice.

My prayers are with you brother.
 
Rob,

Just to let you know that Maggie and you all are in our thoughts and prayers. Just let us know if we can do anything more.

Christopher
Southampton
 
Rob, I can't begin to imagine what you're going through, but if it's any consolation or comfort to you at all, please know that my thoughts and I'm sure those of many, many others are with you and your family.
 
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